Friend Possibly Dying. No Insurance. No One Listens. Please Help!?

Question by : Friend possibly dying. No insurance. No one listens. Please help!?
My friend has been very ill for about 4 years. Seizures, multiple surgeries, GI/digestion problems, consistent vomiting due to lack of digestion and food absorption, bruising appearing on the surfaces of the skin, and tons more. We live in a small town, and she has no insurance. Haven’t found anything she’s qualified for. Visits the ER almost on a weekly basis; and has the last 4 years. After the hospital couldn’t diagnose a problem, they just labeled her a seeker. But she can’t even stomach any pills. She’s gone from about 230 lbs to 111 lbs in the last year alone. (no drugs are not an issue). Most ERs just run basic tests, IV, observe and release. (multiple GI tests and surgeries have been done) She was able to contact NORD (national organization for rare diseases) and the CDC, and they say it seems to fit Whipples Disease. VERY RARE and needs a specIalist who will perform a specific test for a diagnosis. They said if she is diagnosed they will cover the medical expenses, but now it’s a matter with getting funding, coverage and someone to lIsten to her to get into the specialist. PLEASE HELP! She is withering away in front of me, and after 4 years we are almost there. I don’t want her to die, and if it is Whipples it’s fatal without treatment. Please and insight? More organizations we haven’t found? She has two small children 🙁
6 days ago
Additional Details
We are near Sacramento, CA. No luck yet; even a teaching hospital locally. 🙁 we will continue to try of course. 🙂
I will look into the church. For a while she had medi-cal, but has since been cut. Everything through the ERs are out of pocket. So far over $ 250,000. She won’t qualify for SSI or disability without an official diagnosis.

Best answer:

Answer by ?
if you can get her to a preacher they will have funds to get her test done you write very well why not write also to a research center for this strange illness im sure she would agree to helping them find cure by helping her if you get her to uk on holiday the hospital here will look after her without insurance godbless

Answer by Top Source
Is she US citizen?

I dont know why she’s not qualified for Social Sec Disablity, SSD, or SSI, Supplemental Security Income for low-income ppL.

Who paid for the surgeries?

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